“No sex, age, tissue or organs are spared from effects of Celiac Disease”

This is the #1 thing you should listen to if you or someone you love has Celiac Disease or Gluten Sensitivity. If you have people in your life or even one of your doctors who doubt the serious nature of it, have them listen too! (link at bottom)

2/27/17: Dr Allessio Fasano from the Center for Celiac Research is interviewed by Dr Theresa Nacassio on her radio show.

He talks about Celiac Disease, Gluten Sensitivity, the Microbiome, Leaky Gut, neurological complications in the brain and Autism, ADHD, Dimentia, Depression, Skin (Dermatitis Herpeteformis), Probiotics, Fecal Transplants and more!  He even talks about the Non-hybridized wheat myth, GMO’s, pesticides and more.

“No sex, age, tissue or organs are spared from the effects of Celiac Disease….”

The interview starts at  4min and 55 seconds on the timer in the link. You can fast forward through commercials too.  Dr Nacassio also has lots of other links to Dr Fasano’s interviews and talks on Celiac Disease up on her site.

Click Here

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Celiac Awareness Month: 300 Symptoms

The average time it takes to be diagnosed with Celiac Disease is 6-10 years!  Why is this so?  I believe it is because people (and many doctors) don’t know the 300 signs and symptoms. Another reason is that people are going on a GF Diet before getting a diagnosis and many just refuse to be tested. If you  have a family member or mother, father, brother, sister, grandparent, cousin, etc with Celiac Disease, you should be tested. Not everyone has the same symptoms.

Below are the 300 signs and symptoms of Celiac Disease. A celiac must be strict with their diet.  Just a crumb or a trace sets the immune system into havoc, which can lead to serious long term complications. Those who go on a GF Diet without Celiac Testing often assume that they are just gluten intolerant. They are at risk because they are not strict like a diagnosed Celiac would be. Therefore; they continually expose themselves to gluten via cross contamination and cheating. This leaves their immune system in attack mode and opens the person up to serious autoimmune complications!

Celiac Disease is an autoimmune disorder

The 300 Signs and Symptoms are courtesy of : “Recognizing Celiac Disease” by Cleo J. Libonati. (Gluten Free Works) way back in January of 2007. We have a copy of this book here in our library at our cafe, deli and bakery. (Link at bottom of list)

Blood System Symptoms

Abnormal levels of blood components and quality of blood cells and plasma, detected by blood studies ordered by a doctor.

  • Anemia, Folic acid
  • Anemia, Iron
  • Anemia, Vitamin B12
  • Anti-Endomysium Antibodies (EMA)
  • Anti-Gliadin Antibodies (AGA)
  • Anti-Tissue Transglutaminase Antibodies (tTG)
  • Associated Autoimmune Antibodies
  • Bone Alkaline Phosphatase Enzyme, Elevated
  • Calcium, Low
  • Cholesterol, Low (below 156)
  • Coagulation Factors, Low
  • Copper, Low
  • Hemochromatosis
  • Glucose, Low or elevated
  • Homocysteine, Elevated
  • Hyperprolactinemia (elevated prolactin hormone)
  • Hypoprothrombinemia
  • Idiopathic Thrombocytopenic Purpura
  • Liver Enzymes, Elevated
  • Macroamylasemia
  • Macrocytosis
  • Macrolipasemia
  • Magnesium, Low
  • Neutropenia
  • Phosphorus, Low
  • Plasma Proteins, Low
  • Potassium, Low
  • Prolonged Prothrombin Time
  • Transient Erythroblastopenia
  • Zinc, Low

Body Composition Symptoms

Disorders of the body as a whole.

  • Anorexia (Poor appetite)
  • Appetite, Increased
  • Cachexia (Wasting of the body)
  • Loss of Vitality
  • Obesity
  • Weight Gain, Unexplained
  • Weight Loss, Unexplained

Cardiovascular System Symptoms

Disorders of the heart and blood vessels.

  • Angina Pectoris
  • Aortic Vasculitis
  • Atherosclerosis
  • Cardiomegaly
  • Coronary Artery Disease
  • Easy Bruising (Ecchymosis)
  • Hypertension
  • Idiopathic Dilated Cardiomyopathy
  • Nosebleeds, Unexplained

Digestive System Symptoms

The following symptoms in this section may be present alone or in any combination in celiac disease.  They result from inflammation, damage,and interference with normal function caused by gluten exposure in the digestive tract itself and/or nutritional deficiencies.  As you see, problems can develop not only in the small intestine where inflammation can be intense, but also in other areas such as mucosal tissues of the mouth, esophagus, stomach and colon.

  • Abdominal Distention (Bloating)
  • Abdominal Pain
  • Adenocarcinoma of the Small Intestine
  • Aphthous Ulcers (Canker sores in mouth)
  • Autoimmune Cholangitis
  • Beta Casein Enteropathy (Cow’s dairy intolerance similar to celiac disease)
  • Bleeding, Unexplained
  • Cancer of the Esophagus
  • Cancer of the Pharynx
  • Candida Infections
  • Carbohydrate Malabsorption
  • Cheilosis (Red lips, cracking/ oozing at corners of mouth)
  • Colitis, Collagenous
  • Colitis, Lymphocytic
  • Colitis, Ulcerative
  • Colonic Volvulus (Loop of intestine twists causing strangulation of intestine)
  • Constipation
  • Constipation Alternating with Diarrhea
  • Crohn’s Disease
  • Defective Tooth Enamel (Yellow, white spots, missing enamel)
  • Delayed Gastric Emptying (Early fullness after eating)
  • Diarrhea, acute (Also called celiac crisis)
  • Diarrhea, chronic
  • Duodenal Erosions in the Second Part of Duodenum (Small ulcers)
  • Dysphagia (Difficulty swallowing)
  • Edema of Small Intestinal Lining
  • Esophageal Small Cell Cancer
  • Esophageal Motor Abnormalities (Poor muscle activity/coordination)
  • Gas
  • Gastric Ulcer (Stomach ulcers)
  • Gastric Ulcerations
  • Gastritis, Collagenous
  • Gastritis, Lymphocytic
  • Gastro-Esophageal Reflux Disease (GERD)
  • Gastro-Intestinal Occult Bleeding (Blood in stool that is not visible to naked eye)
  • Gluten Sensitive Enteritis
  • Gums bleeding/ swollen (Purplish in adults/ red in children)
  • Heartburn
  • H. Pylori Bacter (Infection of the stomach)
  • Impaired Gall Bladder Motility
  • Irritable Bowel Syndrome
  • Jejunitis, chronic
  • Lactose Intolerance (Gas, bloating, loose stools from milk)
  • Laryngospasm
  • Leaky Gut Syndrome
  • Lymphoma
  • Malabsorption of Nutrients
  • Maltose Intolerance (Gas, bloating, loose stools from maltose, a simple carbohydrate)
  • Nausea
  • Oral Mucosal Lesions (Mouth lesions)
  • Plummer-Vinson Syndrome
  • Post-cricoid Cancer
  • Primary Biliary Cirrhosis (Bile backs up in liver)
  • Primary Sclerosing Cholangitis (Scarring of bile ducts in liver)
  • Small Bowel Intussusception (One loop of intestine slips into another)
  • Small Intestinal Bacterial Overgrowth
  • Steatorrhea (Pale, smelly, floating stool hard to flush or sticks to toilet)
  • Sucrose Intolerance (Gas, bloating, mucous in stool from sugar)
  • Tongue (Beefy, red, smooth, burning)
  • Tongue (Fiery red, smooth, swollen, sore)
  • Tongue (Magenta, swollen)
  • Tongue (Pale, smooth, burning)
  • Vomiting

Glandular System Symptoms

Disorders of the glands.

  • Addison’s Disease (Adrenal gland failure)
  • Autoimmune Hepatitis
  • Autoimmune Thyroiditis (Hypothyroidism)
  • Diabetes Mellitus Type I
  • Diabetic Instability
  • Gastro-Intestinal Complications of Type 1 Diabetes
  • Grave’s Disease (Hyperthyroidism)
  • Hepatic Granulomatous Disease
  • Idiopathic Hypoparathyroidism
  • Non-Alcoholic Fatty Liver Disease
  • Pancreatic Insufficiency
  • Parathyroid Carcinoma
  • Primary Hyperparathyroidism
  • Secondary Hypoparathyroidism

Immune System Symptoms

Disorders of antibody production.

  • Allergic Rhinitis
  • Antiphospholipid Syndrome
  • Asthma
  • Autoimmune Disorders in Celiac Disease
  • Autoimmune Disorders in Dermatitis Herpetiformis
  • Autoimmune Polyglandular Syndromes
  • Common Variable Immunodeficiency
  • Food Allergies, IgE and non-IgE Immune Responses
  • IgA Deficiency
  • Sarcoidosis
  • Sjögrens Syndrome
  • Systemic Lupus Erythematosus
  • Urticaria, chronic (Hives)

Integumentary System Symptoms

Disorders of skin, hair, and nails.

  • Alopecia Areata (Patches of hair loss)
  • Alopecia, Diffuse (Balding)
  • Cutaneous Vasculitis
  • Cutis Laxa
  • Dermatitis Herpetiformis
  • Dermatomyositis
  • Eczema
  • Edema (Swelling)
  • Eythema Elevatum Diutinum
  • Erythema Nodosum
  • Follicular Hyperkeratosis (Dry rough skin/ plugged hair follicles on body)
  • Ichthyosis, Acquired
  • Itchy Skin Rash
  • Hangnail
  • Koilonychia (Thin nails that flatten, ends progressively turning up instead of down)
  • Melanoma
  • Nails, Dry and brittle that chip, peel, crack or break easily
  • Nails with Horizontal and Vertical Ridges/Fragile
  • Nail with Rounded and Curved Down Ends, Dark, Dry
  • Nails with White Spots
  • Nails with Splinter Hemorrhages
  • Pityriasis Rubra Pilaris
  • Prurigo Nodularis (Hyde’s Prurigo)
  • Psoriasis
  • Scleroderma
  • Seborrhea
  • Thin hair
  • Vitiligo

Lymphatic System Symptoms

Disorders of the lymphocytes (white blood cells), lymph nodes and spleen.

  • B-cell non-Hodgkin’s Lymphoma
  • Cryptic Intestinal T-cell Lymphoma (Refractory Sprue)
  • Enteropathy Associated T-cell Lymphoma (EATL)
  • Extraintestinal Lymphomas
  • Intraepithelial Lymphocytosis in Small Bowel Samples
  • Lymphadenopathy
  • Mesenteric Lymph Node Cavitation
  • Hyposplenism (Atrophy of spleen)

Muscular System Symptoms

Disorders of muscle structure and function.

  • Hypokalemic Rhabdomyolysis (Acute, severe potassium deficiency)
  • Muscle Pain and Tenderness
  • Muscle Spasm and Cramps
  • Muscle Wasting
  • Muscle Weakness
  • Osteomalacic Myopathy
  • Polymyositis
  • Tetany

Nervous System Symptoms

Disorders of nerves, brain and spinal cord structure and function.

  • Anxiety
  • Apathy
  • Ataxia, Gait Disturbance
  • Ataxia, Gluten
  • Ataxia, Progressive Myoclonic
  • Brain Atrophy
  • Cerebral Perfusion Abnormalities (Poor blood flow)
  • Chonic Fatigue Syndrome
  • Chorea
  • Cortical Calcifying Angiomatosis
  • Dementia
  • Depression
  • Epilepsy
  • Fatigue/ Lassitude
  • Headache
  • Inability to Concentrate
  • Insomnia
  • Irritability
  • Migraine
  • Multiple Sclerosis
  • Nervous System Disorders
  • Peripheral Neuropathy
  • Progressive Multifocal Leukoencephalopathy
  • Schizophrenic Spectrum Disorders
  • Tremors
  • Vasculitis of the Central Nervous System

Pulmonary System Symptoms

Disorders of lung tissue and broncheal tree structure and function.

  • Bronchiectasis
  • Bronchial Pneumonia
  • Idiopathic Pulmonary Hemosiderosis
  • Increased Pulmonary Permeability
  • Increased Susceptibility to Tuberculosis
  • Lung Cavities or Abcess
  • Non-Response to Tuberculosis Treatment
  • Pneumococcal Septicemia

Sensory System Symptoms

Disorders of sense organ structure and function.

  • Bitot’s Spots (Foamy patches on whites of eye)
  • Blepharitis
  • Bloodshot Eyes
  • Blurred Vision
  • Cataracts
  • Keratoconjunctivitis Sicca
  • Keratomalacia
  • Nightblindness
  • Ocular Myopathy
  • Smell, Loss of
  • Taste, Loss of
  • Uveitis, Bilateral
  • Xerophthalmia

Skeletal System Symptoms

Disorders of bone, joints and teeth.

  • Bone Fracture
  • Bone Pain
  • Enteropathic Arthritis
  • Osteitis Fibrosa
  • Osteomalacia
  • Osteonecrosis
  • Osteoporosis
  • Psoriatic Arthritis
  • Recurrent Monoarthritis

Urinary System Symptoms

Disorders of kidneys and urinaty tract structure and function.

  • Hypocalciuria
  • IgA Nephropathy
  • Kidney Stones
  • Urinary Tract Infection

Reproductive System Symptoms in Females

Disorders of organ structure and function.

  • Amenorrhea (Absence of menstrual period)
  • Early Menopause
  • Infertility
  • Late Menarche (Late start of menstrual periods)
  • Premenstrual Syndrome
  • Dysmenorrhea (Painful menstrual periods)
  • Dyspareunia (Painful intercourse)
  • Vaginitis

Reproductive System Symptoms in Males

Disorders of organ structure and function.

  • Hypogonadism
  • Impotence
  • Infertility
  • Sperm Abnormalities

Reproduction: Pregnancy, Labor & Delivery and Puerperium Symptoms

Disorders of childbearing.

  • Severe Iron Deficiency Anemia in Pregnancy
  • Short Duration of Breast Feeding
  • Miscarriage
  • Complications During Pregnancy, Labor and Delivery
  • Complications After Childbirth

Zygote Development Symptoms

Disorders of chromosomes.

  • Down Syndrome
  • Turner’s Syndrome

Fetus Development Symptoms

Disorders of that occur before birth of the child.

  • Congenital Anomalies
  • Intrauterine Growth Retardation
  • Cystic Fibrosis
  • Spina Bifida

Child Development Symptoms

Disorders of children that occur after birth.

  • Autism and Learning Disorders
  • Attention Deficit  Hyperactive Disorder (ADHD)
  • Cancer Predisposition in Children
  • Chronic Bullous Dermatosis
  • Delayed Puberty in Boys
  • Delayed Puberty in Girls
  • Dermatitis Herpetiformis
  • Developmental Delay
  • Failure to Thrive and Growth Retardation
  • Fecal Occult Blood (Blood found in stool that is not visible to the naked eye)
  • Glycogenic Acanthosis
  • Hypotonia
  • Juvenile Autoimmune Thyroid Disease
  • Juvenile Diabetes Type 1
  • Juvenile Idiopathic Arthritis
  • Abnormal Blood Studies
  • Latent Anemia in Enzymopathies of Small Intestine (Lack of enzymes produced by villi)
  • Penicilllin V Impaired Absorption
  • Refractory Anemia (Unresponsive to iron therapy)
  • Osteopenia
  • Rickets
  • Short Staure
  • Stroke in Childhood

Here are some other ways to look at various symptoms :

Behavioral Symptoms

  • Aloofness
  • Hyperactivity
  • Irritability (Common in children with celiac disease)
  • Impatience
  • Lack of Desire to Get Things Done
  • Lack of Feeling
  • Restlessness
  • Timid Behavior
  • Violent Behavior

Neurological Issues

  • Anxiety
  • Apathy
  • Bipolar disorder
  • Depression
  • Difficulty Making Friendships
  • Easy Frustration and Anger
  • Nervousness
  • Panic Attacks
  • Sense of Worthlessness
  • Overly Self-critical
  • Hysteria
  • Hypochondria

Cognitive (Thinking) Symptoms

  • Confused/ Faulty Thinking
  • Confabulation
  • Delusions
  • Dementia
  • Disorientation
  • Faulty Learning
  • Hallucination
  • Inattentiveness
  • Loss of Memory
  • Loss of Immediate Memory
  • Poor Memory
  • Reduced Learning
  • Slow Thinking
  • Scattered Thinking

click here for Gluten Free Works if you would like more information

Celiac get tested before

Celiac Disease and Your Kidneys

Over the years I have put a few articles in my newsletter about Kidney Stones, Berger’s Disease (IgA Nephropathy) and Celiac Disease; because I am affected by all three.  Some of our customers are going through the same issues, some have had kidney transplants, some are awaiting transplants and some are just experiencing Kidney Stones.  The following information was originally in a 2012 newsletter and a 2014 Newsletter. I have compiled them both into one article for the blog. As usual, I will use my own situation so you can relate to it. The bottom line here is for you to be aware.

For most of my life I battled bladder infections and surgery and constant kidney stones and kidney infections. If any of you have battled kidney stones and also have Celiac Disease; you will be glad to know that there is a reason why.  I was having stones way before being told I was Celiac and many years later I was told by doctors that there was absolutely no correlation between stones or Celiac Disease. Well, times have really changed.

A few years ago between November and December I was once again battling constant kidney stones. I decided to find a new Nephrologist and he really gave me an education after 3 weeks of constant stones and lab tests. He asked me what I was eating different in November and December of every year (when I always experienced the most stones). I had an ah-ha moment! Every year my mother in law would send us a big box of awesome mixed nuts from Michigan; I would eat some every night when I got home. No doctor ever had asked me what I was eating differently.

There is a strong correlation between Celiac Disease, Kidney Stones and Berger’s Disease. My new doctor even explained it to me in a way that I could actually understand it and he even drew pictures for me!  If you are gluten free and casein free like I am, the lack of calcium can also cause stones, I pass calcium and oxalate stones.  So , if you, your child, or a loved one suffers from stones, this is well worth reading and it is great just to be aware.  I will first discuss Kidney Stones and then I will discuss Berger’s Disease (IgA Nephropathy) as well.

So, for the newsletter, I decided to see if I could find what my Doctor told me in writing somewhere and I found it in several places. Below is an excerpt from one of the best write ups I have seen on kidney stones; by John Libonati at Gluten Free Works.

Kidney Stones
“In active celiac disease, the normal mechanism to get rid of oxalate (calcium binding with oxalate) is prevented by fat malabsorption. If too many fatty acids are present in the intestine, the calcium binds with them instead and is excreted as waste. The oxalate remains to be absorbed into the bloodstream by the colon where it is then excreted into the urine.  This process is called enteric hyperoxaluria. “Enteric” means intestinal. “Hyper” means high. “Oxaluria” means oxalate in the urine.  Calcium present in the urine binds with the oxalate to form crystals.

In enteric hyperoxaluria, the excess free fatty acids, from fat malabsorption, compete with oxalate for calcium binding, leading to an increased availability of oxalate for absorption (solubility theory). This oxalate is absorbed in the colon, which is made more permeable to unabsorbed bile salts and fatty acids (permeability theory).3

Oxalate that should have combined with calcium in the gut to be properly excreted in stool now shows up in the kidneys where it combines with calcium to be excreted in the urine.

Stones form when the amounts of oxalate and calcium are high, the urine is concentrated and the pH (acidity) is low, all of which allow the calcium and oxalate to precipitate out of the urine to remain in the kidney. To illustrate this problem of concentration, think of stirring sugar into a pitcher of lemonade…add too much sugar and it begins to fall to the bottom of the pitcher.

If nothing changes, stones remain in the kidneys to grow and block the passageways of urine excretion.”  80% of kidney stones are formed from calcium oxalate and this is the form most often found in celiac disease. Calcium oxalate is the combination of calcium and oxalate. Calcium is an important mineral that the body needs for structure and function. Oxalate is found in foods in the form of oxalic acid. Oxalic acid is an extremely strong acid found in many plant foods. 

The 8 foods that increase urinary oxalate excretion are:                                    rhubarb, spinach, strawberries, chocolate, wheat bran, nuts, beets, and tea.          (A Celiac should not be eating wheat anyway!)  However, following a low oxalate diet and gluten free diet is not enough for me, I also take medication to help me.

You will be amazed…. click on link for more info:    http://glutenfreeworks.com/blog/2010/11/17/kidney-stones-renal-calculus-causes-treatment-in-celiac-disease/

Berger’s Disease (IgA Nephropathy) and Celiac Disease

Have you been told your creatinine levels are very high in your urine, blood in your urine, high protein in your urine? You should get checked.  I have battled this for the past 5 years or so and I take 2 medications to help me and I follow a low sodium diet.  The Best information I have found is the following from the Mayo Clinic.

IgA nephropathy (nuh-FROP-uh-the) is a common kidney disease that occurs when an antibody called immunoglobulin A (IgA) lodges in your kidneys. This hampers your kidneys’ ability to filter waste, excess water and electrolytes from your blood. Over time, IgA nephropathy – also called Berger’s disease – can lead to blood and protein in your urine, high blood pressure, and swollen hands and feet.

IgA nephropathy usually progresses slowly over many years, and although some people eventually achieve complete remission, others develop end-stage kidney failure. No cure exists for IgA nephropathy, but certain medications can slow its course.  Keeping your blood pressure under control and reducing your cholesterol levels also may help keep IgA nephropathy in check. (My cholesterol is under 125!)

Conditions or factors that may be associated with the development of IgA nephropathy include:

  • Genes. IgA nephropathy is more common in some families and in certain ethnic groups, suggesting a genetic component to the disease.  (My grandfather died of Kidney Failure and he was not a diabetic.)
  • Cirrhosis, a condition in which scar tissue replaces normal tissue within the liver
  • Celiac disease, a digestive condition triggered by eating gluten, a protein found in most grains (I have this.)
  • Dermatitis herpetiformis, an itchy, blistering skin disease that stems from gluten intolerance  (I have this, DH is now recognized as the skin manifestation of Celiac Disease and is a symptom of CD.)
  • Infections, including HIV infection and bacterial infections

Link to the Mayo Clinic: http://www.mayoclinic.org/diseases-conditions/iga-nephropathy/basics/symptoms/con-20034366

As usual, I hope you have found this information useful and as always take control of your health!