A Cure for Celiac Disease and Autoimmune Disorders; Dr Fasano sheds some light on this.

Heather Jacobsen of Stuffed Pepper recently interviewed Doctor Fasano about a possible cure, pill or vaccine for Celiac Disease and other autoimmune disorders.  This is absolutely one of the best interviews I have seen and the best information on the subjects to date.  I highly urge anyone with Celiac Disease, Gluten Sensitivity, Autism, Leaky Gut, Dementia, Alzheimer’s, Diabetes or any autoimmune disease (or anyone who knows someone with any of the above) to read this interview by clicking on the link at the bottom of the post.  In this interview, she covers:

-Vaccine for Celiac Disease?

-Leaky Gut, Inflammation and it’s role in Celiac and Autoimmune Diseases ( and diseases affecting the brain, etc)

-Trial Drugs


-Gluten Free Diet, Grain Free Diet and Non-Responsive Celiac Disease


Tax Deduction Guide for GF Products

The National Foundation for Celiac Awareness (NFCA) has put up a guide showing you what you need to do if you would like to take a tax deduction for the increased expense when following your gluten free diet. It also includes the tax code references and rulings! This is definitely something you may want to look into.


FDA Being Sued for Failing to Regulate Gluten In Medicine

Well, I am not big on people filing lawsuits, but I have to agree on this one, there is no reason not to label ingredients in drugs! In this country we have to label food, but not medications and that just makes no sense.  People with food allergies have a right to know what is in the medication that their doctors are prescribing.  It is sad when neither the doctor who gives you an Rx for medicine or the pharmacy filling the Rx can tell you what is in the medication!

I personally think that every single ingredient should be mandated to be disclosed in all food, all drugs and all alcohol.  That will certainly make life easier for all of us with food allergies and celiac disease.  If you read my blog post about the difference between food allergies and sensitivities, I talk about my severe drug reactions; when I asked what I reacted to in the drugs, the hospital could not tell me what is in it!  There is something wrong with this and it is dangerous!

It took about 8 years for the FDA to d0 something about gluten free labeling for food and it has already taken them 4 years to respond to the plaintiff on this one…so we shall see. Click link below to see article in Wall Street Journal.


Pollen/Oral Food Allergy Syndrome

Spring is in the air and that means pollen and it can also affect you via food that you eat! Pollen or Oral Allergy Syndrome is very common in those with pollen allergies and very common in adults. I am allergic to just about every tree, grass, hay, wool, feathers, pet dander (cats, dogs and more) and really did not know much about the cross reactions with food.

Basically, a person with a pollen allergy can develop allergic symptoms to foods that are related to that specific pollen. The symptoms can be an itchy or mild swelling of the throat, lips or mouth when they eat certain raw fruits and vegetables. What is happening is that the immune system is identifying them as the pollen that the immune system already has a trigger to.

Birch Tree Pollen: Apples and Pears

Birch Tree and Mugwort Weed Pollen: Celery and Carrots

Grass Pollen: Potato

Symptoms may be worse during or after that related pollen season. Less than 10% have widespread reactions and only about 1-2% have had anaphylaxis. Cooking the fruit or vegetables before eating breaks down the protein and will make the food less allergenic.  To see the article featuring Dr Hemant Sharma of Children’s National Medical Center in Washington, DC; click on link below.


300 Signs and Symptoms of Celiac Disease (adults and children)

300 Signs, Symptoms, Associated Disorders/Complications directly or indirectly, resulting from celiac disease and gluten sensitivity.

Source: Cleo J. Libonati, RN, BSN, Recognizing Celiac Disease. “This list is now being used by celiac disease centers, national celiac organizations and health organizations worldwide”.

Blood System Symptoms
Abnormal levels of blood components and quality of blood cells and plasma, detected by blood studies ordered by a doctor.
• Anemia, Folic acid
• Anemia, Iron
• Anemia, Vitamin B12
• Anti-Endomysium Antibodies (EMA)
• Anti-Gliadin Antibodies (AGA)
• Anti-Tissue Transglutaminase Antibodies (tTG)
• Associated Autoimmune Antibodies
• Bone Alkaline Phosphatase Enzyme, Elevated
• Calcium, Low
• Cholesterol, Low (below 156)
• Coagulation Factors, Low
• Copper, Low
• Hemochromatosis
• Glucose, Low or elevated
• Homocysteine, Elevated
• Hyperprolactinemia (elevated prolactin hormone)
• Hypoprothrombinemia
• Idiopathic Thrombocytopenic Purpura
• Liver Enzymes, Elevated
• Macroamylasemia
• Macrocytosis
• Macrolipasemia
• Magnesium, Low
• Neutropenia
• Phosphorus, Low
• Plasma Proteins, Low
• Potassium, Low
• Prolonged Prothrombin Time
• Transient Erythroblastopenia
• Zinc, Low

Body Composition Symptoms
Disorders of the body as a whole.
• Anorexia (Poor appetite)
• Appetite, Increased
• Cachexia (Wasting of the body)
• Loss of Vitality
• Obesity
• Weight Gain, Unexplained
• Weight Loss, Unexplained

Cardiovascular System Symptoms
Disorders of the heart and blood vessels.
• Angina Pectoris
• Aortic Vasculitis
• Atherosclerosis
• Cardiomegaly
• Coronary Artery Disease
• Easy Bruising (Ecchymosis)
• Hypertension
• Idiopathic Dilated Cardiomyopathy
• Nosebleeds, Unexplained

Digestive System Symptoms
The following symptoms in this section may be present alone or in any combination in celiac disease. They result from inflammation, damage,and interference with normal function caused by gluten exposure in the digestive tract itself and/or nutritional deficiencies. As you see, problems can develop not only in the small intestine where inflammation can be intense, but also in other areas such as mucosal tissues of the mouth, esophagus, stomach and colon.
• Abdominal Distention (Bloating)
• Abdominal Pain
• Adenocarcinoma of the Small Intestine
• Aphthous Ulcers (Canker sores in mouth)
• Autoimmune Cholangitis
• Beta Casein Enteropathy (Cow’s dairy intolerance similar to celiac disease)
• Bleeding, Unexplained
• Cancer of the Esophagus
• Cancer of the Pharynx
• Candida Infections
• Carbohydrate Malabsorption
• Cheilosis (Red lips, cracking/ oozing at corners of mouth)
• Colitis, Collagenous
• Colitis, Lymphocytic
• Colitis, Ulcerative
• Colonic Volvulus (Loop of intestine twists causing strangulation of intestine)
• Constipation
• Constipation Alternating with Diarrhea
• Crohn’s Disease
• Defective Tooth Enamel (Yellow, white spots, missing enamel)
• Delayed Gastric Emptying (Early fullness after eating)
• Diarrhea, acute (Also called celiac crisis)
• Diarrhea, chronic
• Duodenal Erosions in the Second Part of Duodenum (Small ulcers)
• Dysphagia (Difficulty swallowing)
• Edema of Small Intestinal Lining
• Esophageal Small Cell Cancer
• Esophageal Motor Abnormalities (Poor muscle activity/coordination)
• Gas
• Gastric Ulcer (Stomach ulcers)
• Gastric Ulcerations
• Gastritis, Collagenous
• Gastritis, Lymphocytic
• Gastro-Esophageal Reflux Disease (GERD)
• Gastro-Intestinal Occult Bleeding (Blood in stool that is not visible to naked eye)
• Gluten Sensitive Enteritis
• Gums bleeding/ swollen (Purplish in adults/ red in children)
• Heartburn
• H. Pylori Bacter (Infection of the stomach)
• Impaired Gall Bladder Motility
• Irritable Bowel Syndrome
• Jejunitis, chronic
• Lactose Intolerance (Gas, bloating, loose stools from milk)
• Laryngospasm
• Leaky Gut Syndrome
• Lymphoma
• Malabsorption of Nutrients
• Maltose Intolerance (Gas, bloating, loose stools from maltose, a simple carbohydrate)
• Nausea
• Oral Mucosal Lesions (Mouth lesions)
• Plummer-Vinson Syndrome
• Post-cricoid Cancer
• Primary Biliary Cirrhosis (Bile backs up in liver)
• Primary Sclerosing Cholangitis (Scarring of bile ducts in liver)
• Small Bowel Intussusception (One loop of intestine slips into another)
• Small Intestinal Bacterial Overgrowth
• Steatorrhea (Pale, smelly, floating stool hard to flush or sticks to toilet)
• Sucrose Intolerance (Gas, bloating, mucous in stool from sugar)
• Tongue (Beefy, red, smooth, burning)
• Tongue (Fiery red, smooth, swollen, sore)
• Tongue (Magenta, swollen)
• Tongue (Pale, smooth, burning)
• Vomiting

Glandular System Symptoms
Disorders of the glands.
• Addison’s Disease (Adrenal gland failure)
• Autoimmune Hepatitis
• Autoimmune Thyroiditis (Hypothyroidism)
• Diabetes Mellitus Type I
• Diabetic Instability
• Gastro-Intestinal Complications of Type 1 Diabetes
• Grave’s Disease (Hyperthyroidism)
• Hepatic Granulomatous Disease
• Idiopathic Hypoparathyroidism
• Non-Alcoholic Fatty Liver Disease
• Pancreatic Insufficiency
• Parathyroid Carcinoma
• Primary Hyperparathyroidism
• Secondary Hypoparathyroidism

Immune System Symptoms
Disorders of antibody production.
• Allergic Rhinitis
• Antiphospholipid Syndrome
• Asthma
• Autoimmune Disorders in Celiac Disease
• Autoimmune Disorders in Dermatitis Herpetiformis
• Autoimmune Polyglandular Syndromes
• Common Variable Immunodeficiency
• Food Allergies, IgE and non-IgE Immune Responses
• IgA Deficiency
• Sarcoidosis
• Sjögrens Syndrome
• Systemic Lupus Erythematosus
• Urticaria, chronic (Hives)

Integumentary System Symptoms
Disorders of skin, hair, and nails.
• Alopecia Areata (Patches of hair loss)
• Alopecia, Diffuse (Balding)
• Cutaneous Vasculitis
• Cutis Laxa
• Dermatitis Herpetiformis
• Dermatomyositis
• Eczema
• Edema (Swelling)
• Eythema Elevatum Diutinum
• Erythema Nodosum
• Follicular Hyperkeratosis (Dry rough skin/ plugged hair follicles on body)
• Ichthyosis, Acquired
• Itchy Skin Rash
• Hangnail
• Koilonychia (Thin nails that flatten, ends progressively turning up instead of down)
• Melanoma
• Nails, Dry and brittle that chip, peel, crack or break easily
• Nails with Horizontal and Vertical Ridges/Fragile
• Nail with Rounded and Curved Down Ends, Dark, Dry
• Nails with White Spots
• Nails with Splinter Hemorrhages
• Pityriasis Rubra Pilaris
• Prurigo Nodularis (Hyde’s Prurigo)
• Psoriasis
• Scleroderma
• Seborrhea
• Thin hair
• Vitiligo

Lymphatic System Symptoms
Disorders of the lymphocytes (white blood cells), lymph nodes and spleen.
• B-cell non-Hodgkin’s Lymphoma
• Cryptic Intestinal T-cell Lymphoma (Refractory Sprue)
• Enteropathy Associated T-cell Lymphoma (EATL)
• Extraintestinal Lymphomas
• Intraepithelial Lymphocytosis in Small Bowel Samples
• Lymphadenopathy
• Mesenteric Lymph Node Cavitation
• Hyposplenism (Atrophy of spleen)

Muscular System Symptoms
Disorders of muscle structure and function.
• Hypokalemic Rhabdomyolysis (Acute, severe potassium deficiency)
• Muscle Pain and Tenderness
• Muscle Spasm and Cramps
• Muscle Wasting
• Muscle Weakness
• Osteomalacic Myopathy
• Polymyositis
• Tetany

Nervous System Symptoms
Disorders of nerves, brain and spinal cord structure and function.
• Anxiety
• Apathy
• Ataxia, Gait Disturbance
• Ataxia, Gluten
• Ataxia, Progressive Myoclonic
• Brain Atrophy
• Cerebral Perfusion Abnormalities (Poor blood flow)
• Chonic Fatigue Syndrome
• Chorea
• Cortical Calcifying Angiomatosis
• Dementia
• Depression
• Epilepsy
• Fatigue/ Lassitude
• Headache
• Inability to Concentrate
• Insomnia
• Irritability
• Migraine
• Multiple Sclerosis
• Nervous System Disorders
• Peripheral Neuropathy
• Progressive Multifocal Leukoencephalopathy
• Schizophrenic Spectrum Disorders
• Tremors
• Vasculitis of the Central Nervous System

Pulmonary System Symptoms
Disorders of lung tissue and broncheal tree structure and function.
• Bronchiectasis
• Bronchial Pneumonia
• Idiopathic Pulmonary Hemosiderosis
• Increased Pulmonary Permeability
• Increased Susceptibility to Tuberculosis
• Lung Cavities or Abcess
• Non-Response to Tuberculosis Treatment
• Pneumococcal Septicemia

Sensory System Symptoms
Disorders of sense organ structure and function.
• Bitot’s Spots (Foamy patches on whites of eye)
• Blepharitis
• Bloodshot Eyes
• Blurred Vision
• Cataracts
• Keratoconjunctivitis Sicca
• Keratomalacia
• Nightblindness
• Ocular Myopathy
• Smell, Loss of
• Taste, Loss of
• Uveitis, Bilateral
• Xerophthalmia

Skeletal System Symptoms
Disorders of bone, joints and teeth.
• Bone Fracture
• Bone Pain
• Enteropathic Arthritis
• Osteitis Fibrosa
• Osteomalacia
• Osteonecrosis
• Osteoporosis
• Psoriatic Arthritis
• Recurrent Monoarthritis

Urinary System Symptoms
Disorders of kidneys and urinary tract structure and function.
• Hypocalciuria
• IgA Nephropathy
• Kidney Stones
• Urinary Tract Infection

Reproductive System Symptoms in Females
Disorders of organ structure and function.
• Amenorrhea (Absence of menstrual period)
• Early Menopause
• Infertility
• Late Menarche (Late start of menstrual periods)
• Premenstrual Syndrome
• Dysmenorrhea (Painful menstrual periods)
• Dyspareunia (Painful intercourse)
• Vaginitis

Reproductive System Symptoms in Males
Disorders of organ structure and function.
• Hypogonadism
• Impotence
• Infertility
• Sperm Abnormalities

Reproduction: Pregnancy, Labor & Delivery and Puerperium Symptoms
Disorders of childbearing.
• Severe Iron Deficiency Anemia in Pregnancy
• Short Duration of Breast Feeding
• Miscarriage
• Complications During Pregnancy, Labor and Delivery
• Complications After Childbirth

Zygote Development Symptoms
Disorders of chromosomes.
• Down Syndrome
• Turner’s Syndrome

Fetus Development Symptoms
Disorders of that occur before birth of the child.
• Congenital Anomalies
• Intrauterine Growth Retardation
• Cystic Fibrosis
• Spina Bifida

Child Development Symptoms
Disorders of children that occur after birth.
• Autism and Learning Disorders
• Attention Deficit Hyperactive Disorder (ADHD)
• Cancer Predisposition in Children
• Chronic Bullous Dermatosis
• Delayed Puberty in Boys
• Delayed Puberty in Girls
• Dermatitis Herpetiformis
• Developmental Delay
• Failure to Thrive and Growth Retardation
• Fecal Occult Blood (Blood found in stool that is not visible to the naked eye)
• Glycogenic Acanthosis
• Hypotonia
• Juvenile Autoimmune Thyroid Disease
• Juvenile Diabetes Type 1
• Juvenile Idiopathic Arthritis
• Abnormal Blood Studies
• Latent Anemia in Enzymopathies of Small Intestine (Lack of enzymes produced by villi)
• Penicilllin V Impaired Absorption
• Refractory Anemia (Unresponsive to iron therapy)
• Osteopenia
• Rickets
• Short Staure
• Stroke in Childhood

Here are some other ways to look at various symptoms:
Behavioral Symptoms
• Aloofness
• Hyperactivity
• Irritability (Common in children with celiac disease)
• Impatience
• Lack of Desire to Get Things Done
• Lack of Feeling
• Restlessness
• Timid Behavior
• Violent Behavior
Neurological Issues
• Anxiety
• Apathy
• Bipolar disorder
• Depression
• Difficulty Making Friendships
• Easy Frustration and Anger
• Nervousness
• Panic Attacks
• Sense of Worthlessness
• Overly Self-critical
• Hysteria
• Hypochondria
Cognitive (Thinking) Symptoms
• Confused/ Faulty Thinking
• Confabulation
• Delusions
• Dementia
• Disorientation
• Faulty Learning
• Hallucination
• Inattentiveness
• Loss of Memory
• Loss of Immediate Memory
• Poor Memory
• Reduced Learning
• Slow Thinking
• Scattered Thinking

After Celiac: Vitamin Deficiencies, Symptoms, Testing

I am shocked by the number of customers who tell me that they were diagnosed with Celiac Disease, were told to “just eat gluten free” and then sent on their way.  No follow up appointments made and no other tests done. In this post, I tell you what tests should be done, which vitamin & nutritional deficiencies are common and the symptoms of those deficiencies.

Other testing is imperative, especially if you have gone a long time with undiagnosed Celiac Disease. If your regular physician diagnoses you, I highly recommend seeing a Gastroenterologist and a Dietitian who are well versed in Celiac Disease. Why? Because Celiac Disease can cause Anemia, Thyroid Issues, Severe Vitamin Deficiencies, etc. Follow up is also imperative to make sure that your small intestine is healing and that you are truly eating a gluten-free diet.

With all of the places out there offering a “GF Menu”, but not willing to  guarantee it is truly GF, there is a lot of cross contamination going on. I hear this from so many customers who come in and say they eat at “any place that has a GF Menu“. Then they are feeling sick and go back to their doctor and get follow up antibody tests done and their levels are still high;  their Celiac cannot go into remission because they are still ingesting gluten in small amounts. Needless to say, we see them a lot more when they are trying to get their levels down.

In 2011 I wrote extensively about this and sent it out once a year in my newsletter. In 2015, I transferred it to my blog so you can see it anytime. For more detailed information check out my blog post  under “Vitamin Deficiencies”.  I also tell you what the symptoms of the deficiencies are. (click on the blue link below and it will take you right to the article and scroll down to see the list of the 26!)

26 Nutritional and Vitamin Deficiencies in Celiac Disease & Symptoms

In a nut shell, here are just a few of the tests that should be done when diagnosed:

-Celiac Antibodies: IgA, tTg

-Anemia: Hemoglobin, B-12, Folate, etc. (I had Anemia)

-Vitamins & Minerals: B-6, Vitamin D (I had severe deficiencies)

-Mineral Profile

-Renal and Electrolyte Profile (I have Kidney Disease)

-Thyroid: TSH (thyroid stimulating hormone) (I have Hashimoto’s Disease)

-Lipid Profile

-A1C (Diabetes; I put this one on the list; I have pre-diabetes)

Just so you know,  I am not the only one talking about this.. Beyond Celiac; formerly NFCA (National Foundation for Celiac Awareness) put some basic information up as well. It tells you what tests should be run and what your follow up testing for life should be. However, it is nowhere near as involved as what I give you in my previous blog post.

Please be diligent with your health!

Follow Up Testing (Beyond Celiac)


Tax Break for Special Diets?

Gluten and allergen-free meals cost about 242% more than their regular counterparts.  This is not a surprise to most of us.  The link below is a great video link to some information that may help you get some sort of a tax break on the price difference and shipping charges for these specialty meals.

An IRS Information Letter 2011-0035  affirms the tax break: “[T]he excess cost of specially prepared foods designed to treat a medical condition over the cost of ordinary foods which would have been consumed but for the condition is an expense for medical care.”

Watch video for more information and contact your tax professional.


Who is 2x More Likely to Have Celiac Disease and Not Being Tested?

Only 1/2 of Candidates who Need Celiac Testing are Being Tested!

This should not be a surprise to most of us; and I had many of these other conditions too! See the article in Gastroenterology and Endoscopy News (link at bottom). The list below is of those who are 2x more likely to have Celiac based on other medical conditions.

Conditions Where Celiac Disease is 2x as Likely as in General Population

-Abnormal Elevated Liver Enzymes
-Chronic Diarrhea w/ or w/out abdominal pain
-Chronic Iron Deficiency Anemia
-Dermatitis Herpetiformis (itchy skin rash; can appear anywhere)
-Diarrhea and Weight Loss
-Discolored Teeth or developmentally synchronous enamel loss
-Down and Turner Syndromes
-Growth Failure
-Incidental Discovery of Villous Atrophy
-Irritable Bowel Syndrome (IBS)
-Metabolic Bone Disease and Premature Osteoporosis
-Oral Apthous Ulcers (cold sores in mouth)
-Peripheral Neuropathy
-Postprandial Bloating and Gas
-Symptomatic Malabsorption
-Thryoid Disease
-Weight Loss

FODMAPS; What You Need to Know!

There has been a lot of attention given lately about FODMAPS. In this post I will tell you what they are and why people with Celiac  Disease (CD)and Gluten Sensitivity (GS) often have issues with these. Basically, FODMAPS  is a term used to describe a chain of short chain carbohydrates and sugar alcohols that are found naturally in food or added to food.

The acronym FODMAPS stands for fermentable oligo, di and mono saccharides and polyols. Researchers believe that foods with these carbohydrates make IBS & IBD (inflammatory bowel syndrome and inflammatory bowel disease) worse.  Basically, the oligosaccharides are made of fructans and galactans; the disaccharides are comprised of lactose; the monsaccharides are comprised of fructose and the polyols are sugar alcohols such as sorbitol, mannitol, xylitol and maltitol.

Fermentable means they are broken down in the large bowel.  All of these substances are poorly absorbed by the small intestine. The theory is that they may contribute to digestive difficulties in some people due to the processes of fermentation and/or osmosis.  So, basically, they are carbs, lactose and sugars that are hard to digest. Symptoms would include gas, pain, diarrhea, bloating, constipation, distention and nausea.

Foods that are high in FODMAPS are:

Wheat: in all forms, breads, pastas, pastries, cakes, cookies etc, including Rye and Spelt.

Fruits: apples, apricot, cherry, lychee, mango, nectarine, peach, pear, plum, prune, starfruit, watermelon, juices (fruits or juices with apple and pear)

Vegetables: artichokes, asparagus, avacado, beans (and lentils), broccoli, brussel sprouts, cabbage, cauliflower, chickory root, fennel, garlic (and* soups and sauces with garlic), leek, mage tout, mushroom, onion (and soups and sauces with onion), peas, spring onion (white bit), sugar snap peas.

Sugar Free Mints, Gum, Sweets and Drinks: avoid sorbitol, mannitol, lactitol, maltitol, xylitol, erythritol and isomalt.

High Fructose Corn Syrup


Avoid: FOS, Inulin, or oligofructose as ingredients.

Nuts: Almonds, Cahsews, Pistachio

Dandelion Tea

Milk: Milk and products with lactose like cheese, yogurt, milk chocolate, chocolate,  and ice cream.


*I know that for me onions, beans, apples, pears, juices, xylitol, etc; cause me big time problems! Many customers with CD, GS, IBS and IBD  say they have problems with FODMAPS as well and do much better avoiding them. The best way to figure out which ones are a problem would be to remove them all for a few weeks. Then when you try eating one of them, you will know quickly if it is a problem for you. Keep a food diary when you start adding them back in and you will see your own pattern developing based on what you ate.

Genes May Play a Role in Peanut Allergy; Peanut Patch Shows Promise

A new study shows what doctors have long suspected; that genes may play a role in Peanut Allergies.  Below is the study and the article by FARE.


Also from FARE; studies show that the “peanut patch” is showing promise by increasing the tolerance level of those with peanut allergies!