Food Reactions; Know Which Type You Have!

Food Reactions; Know Which One(s) You Have!
On New Years Eve, my friend and I were talking about food allergies and reactions and I was surprised at how much she really did not know about the different types of reactions to food.  So I wrote about this in my January 2015 newsletter and I have transferred this to my blog.
There is a lot of misunderstanding about food reactions, in providers and patients or, from my point of view; from our customers.  Many come in here and just don’t know what they have.  I am not a doctor and you should listen to your doctor, but in our restaurant we see so many people who are just self diagnosing and that is scary. Please see a doctor. What we do here at One Dish Cuisine Cafe, Deli and Bakery is make safe food for those with Celiac Disease, Gluten Sensitivity, life threatening Food Allergies and EoE.
Below, I  will briefly explain the differences between the different food reactions and urge you to get tested when you are not sure what your issue is.  I will use my own situation to highlight the differences for you.

1) Autoimmune Response; Celiac Disease: This IgA autoimmune response can cause more than 300 signs and symptoms. Celiac Disease is the most common condition that falls into this category.  Basically, there is an autoimmune response to gluten and gliadin which can damage the intestines.  Testing for this is done by a Gastroenterologist through blood work and/or small bowel biopsy. I think you should have both.  10-20% of Celiacs test negative on blood work and positive on biopsy.  See a gastroenterologist who knows the guidelines for diagnosing Celiac Disease and get tested before going on a gluten free diet!  EoE and Celiac Disease and Dermetitis Herpeteformis (DH) are good examples of this and I have Celiac Disease and DH.

2)Food Allergy: Type I immediate IgE hypersensitivity immune response: This reaction typically occurs very quickly (minutes to hours) after eating an offending food; symptoms can be mild or severe. Food allergies can cause anaphylaxis (stopping breathing and death) but they may also experience itchy lips/tongue/throat, stuffy nose, headaches, belly ache, diarrhea, gas, bloating, skin reactions, and sudden fatigue. One mild reaction does not mean the next one will be mild! Testing is typically done through skin tests or IgE blood tests by a doctor/allergist. The majority of food allergies have a quick onset reaction.  If sour cream causes immediate diarrhea, or strawberries make your  lips swell or peanuts close your throat – you are not going to easily forget that because the symptoms occur so quickly and are severe.  IgE food panels can be run to help patients when it’s more difficult to figure out which food is causing their reaction because some may have multiple allergies. IgE testing is run through any standard laboratory and is ordered by a doctor/allergist.

I have an IgE allergy to Milk.  I was always told by doctors that I just had a severe lactose intolerance.  When I was not getting better following my GF Diet in the 90’s; my GI decided to refer me for food allergy testing.  I saw a doctor/allergist and they did skin testing for lots of allergies. When I ingest milk products, pretty quickly, the inside of my ears start to itch, my eyelids swell and I itch all over, followed by severe cramping and pains in my stomach and sometimes I start to sweat and can get irritable. If I have baked cheese or milk, the reaction is much less severe. I am lucky,  but this does not mean an anaphylactic reaction will never happen.  I know that mild reactions can sometimes become severe. I have a similar reaction to sulfites and nitrates, but more of an itching response.  With caffeine it is pretty immediate stomach pain and then sometimes I get hives.

Medications: I have also had immediate reactions to some Medications; Biaxin, Reglan, and Morphine.  For example, with Biaxin I had a less severe reaction to Milk (in the form of lactose) that is used to bind the drug together.

-In 2005 I was given Reglan to settle my stomach before going under anesthesia. I had a severe reaction and was given adrenaline/epinephrine. I am not sure what ingredient I reacted to in the Reglan because the hospital could not tell me what was in it, but they were adamant that I never, ever, ever take it! 
-In 1995 I was given Morphine while in the hospital for gall stones and kidney stones. I had a severe reaction; was given adrenalin/epinephrine to counteract the reaction and was told to never allow anyone to give me Morphine again.  I was really glad that I was in the hospital when I had those reactions and I definitely experienced the “impending sense of doom” that is often said to occur. 
-Codeine was not as severe; it made me itch all over and vomit. 
-Synthroid was prescribed for my Hashimoto’s Thyroiditis and I kept telling my doctor it was making me sick and I was told that there was nothing in it to make me sick. I did my own investigation and found out I was reacting to the lactose used in the pill and had to switch to the generic form made without the lactose. The severe stomach pain and itching ended immediately.

These are examples of immediate reactions.  The problem with medications is that you often have to call the manufacturer to figure out what is in the medication because they don’t have to label medication like they label food.

3) Non-immediate (delayed) IgG & IgA response; known as a food intolerance or food sensitivity:  This is very different from an immediate IgE food allergy response because symptoms may not show up for hours or days; which makes it very difficult to figure out exactly which foods are causing which reaction in the body.  Symptoms of IgG food intolerances/sensitivities include: sore throat, stuffy nose, congestion, headaches, belly aches, constipation, diarrhea, gas, bloating, hormone issues, foggy head, headaches, weight gain, fatigue, joint pain, depression, behavior changes, anxiety, and skin issues.  This is where IgG and IgA food sensitivity testing comes in.  Many doctors are not familiar with this type of reaction because it is not always obvious or life threatening and it is harder to diagnose and some delayed IGA reactions can be very serious; such as EoE!

I have minor delayed reactions with Oats, Corn, Quinoa, Millet and Hemp…I have a gluten like reaction to these, or what I would call a “cross reaction”.  I did strict elimination diets to figure this out. Blood tests for food sensitivities (IgG) are more likely to be run by functional medicine or non traditional doctors and they are not usually covered by insurance.

We have seen a huge increase in customers with food sensitivities or intolerances and they usually come in and claim a food allergy, it is not the same thing folks! There is some conflicting evidence on the comparison of IgG versus IgE and the testing behind it.  Note: being allergic to a food doesn’t mean you are intolerant and being intolerant does not mean you are allergic.  IgG testing is often done by alternative practitioners and is said to diagnose inflammatory responses to foods but those tests are not validated by the FDA and therefore this type of testing is often not covered by insurance.

What is the bottom line here?  Know the difference between them:

-Celiac Disease: diagnosed via blood tests and endoscopy with intestinal biopsy done by a Gastroenterologist. Dermatitis Herpetiformis: itchy skin rash that is the very specific IgA Skin Manifestation of Celiac Disease, diagnosis is done via skin biopsy by a Dermatologist.

-Gluten Sensitivity: if you are negative on the above tests for Celiac Disease but have symptoms when you ingest gluten. Diagnosed by Gastroenterologist.
-Food Allergies:  severe and possibly life threatening IgE food reactions diagnosed by a doctor/allergist who will perform IgE Testing because severe reactions mean you should be carrying an epi pen. In the case of EoE, the patient may be referred to Gastroenterologist for biopsy of the Eosiniphil in the Esophagus.
-Food Sensitivities: IgG blood work, stool samples, saliva samples, etc.; are often done by alternative medical practitioners for low level food sensitivities that are said to cause inflammation in the body. The tests are often not covered by insurance because the tests are not validated or approved by the FDA yet and they don’t in any way determine if you have Celiac Disease or Gluten Sensitivity; you need to see a Gastroenterologist for that.  There is no such thing as a “Gluten Allergy”; you would have Celiac Disease or Gluten Sensitivity or you have and IgE Allergy to wheat, rye and barley!
*To see what those with IgE food Allergies are at risk for and what severe reactions look like, please watch this video: “An Emerging Epidemic: Food Allergies in America”.     http://www.foodallergy.org/emerging-epidemic#.VNkA_C79x_g
So, when you come in to see us for a meal,  we would really appreciate it if you would please use the appropriate terminology. Thanks!

Celiac Disease and Your Kidneys

Over the years I have put a few articles in my newsletter about Kidney Stones, Berger’s Disease (IgA Nephropathy) and Celiac Disease; because I am affected by all three.  Some of our customers are going through the same issues, some have had kidney transplants, some are awaiting transplants and some are just experiencing Kidney Stones.  The following information was originally in a 2012 newsletter and a 2014 Newsletter. I have compiled them both into one article for the blog. As usual, I will use my own situation so you can relate to it. The bottom line here is for you to be aware.

For most of my life I battled bladder infections and surgery and constant kidney stones and kidney infections. If any of you have battled kidney stones and also have Celiac Disease; you will be glad to know that there is a reason why.  I was having stones way before being told I was Celiac and many years later I was told by doctors that there was absolutely no correlation between stones or Celiac Disease. Well, times have really changed.

A few years ago between November and December I was once again battling constant kidney stones. I decided to find a new Nephrologist and he really gave me an education after 3 weeks of constant stones and lab tests. He asked me what I was eating different in November and December of every year (when I always experienced the most stones). I had an ah-ha moment! Every year my mother in law would send us a big box of awesome mixed nuts from Michigan; I would eat some every night when I got home. No doctor ever had asked me what I was eating differently.

There is a strong correlation between Celiac Disease, Kidney Stones and Berger’s Disease. My new doctor even explained it to me in a way that I could actually understand it and he even drew pictures for me!  If you are gluten free and casein free like I am, the lack of calcium can also cause stones, I pass calcium and oxalate stones.  So , if you, your child, or a loved one suffers from stones, this is well worth reading and it is great just to be aware.  I will first discuss Kidney Stones and then I will discuss Berger’s Disease (IgA Nephropathy) as well.

So, for the newsletter, I decided to see if I could find what my Doctor told me in writing somewhere and I found it in several places. Below is an excerpt from one of the best write ups I have seen on kidney stones; by John Libonati at Gluten Free Works.

Kidney Stones
“In active celiac disease, the normal mechanism to get rid of oxalate (calcium binding with oxalate) is prevented by fat malabsorption. If too many fatty acids are present in the intestine, the calcium binds with them instead and is excreted as waste. The oxalate remains to be absorbed into the bloodstream by the colon where it is then excreted into the urine.  This process is called enteric hyperoxaluria. “Enteric” means intestinal. “Hyper” means high. “Oxaluria” means oxalate in the urine.  Calcium present in the urine binds with the oxalate to form crystals.

In enteric hyperoxaluria, the excess free fatty acids, from fat malabsorption, compete with oxalate for calcium binding, leading to an increased availability of oxalate for absorption (solubility theory). This oxalate is absorbed in the colon, which is made more permeable to unabsorbed bile salts and fatty acids (permeability theory).3

Oxalate that should have combined with calcium in the gut to be properly excreted in stool now shows up in the kidneys where it combines with calcium to be excreted in the urine.

Stones form when the amounts of oxalate and calcium are high, the urine is concentrated and the pH (acidity) is low, all of which allow the calcium and oxalate to precipitate out of the urine to remain in the kidney. To illustrate this problem of concentration, think of stirring sugar into a pitcher of lemonade…add too much sugar and it begins to fall to the bottom of the pitcher.

If nothing changes, stones remain in the kidneys to grow and block the passageways of urine excretion.”  80% of kidney stones are formed from calcium oxalate and this is the form most often found in celiac disease. Calcium oxalate is the combination of calcium and oxalate. Calcium is an important mineral that the body needs for structure and function. Oxalate is found in foods in the form of oxalic acid. Oxalic acid is an extremely strong acid found in many plant foods. 

The 8 foods that increase urinary oxalate excretion are:                                    rhubarb, spinach, strawberries, chocolate, wheat bran, nuts, beets, and tea.          (A Celiac should not be eating wheat anyway!)  However, following a low oxalate diet and gluten free diet is not enough for me, I also take medication to help me.

You will be amazed…. click on link for more info:    http://glutenfreeworks.com/blog/2010/11/17/kidney-stones-renal-calculus-causes-treatment-in-celiac-disease/

Berger’s Disease (IgA Nephropathy) and Celiac Disease

Have you been told your creatinine levels are very high in your urine, blood in your urine, high protein in your urine? You should get checked.  I have battled this for the past 5 years or so and I take 2 medications to help me and I follow a low sodium diet.  The Best information I have found is the following from the Mayo Clinic.

IgA nephropathy (nuh-FROP-uh-the) is a common kidney disease that occurs when an antibody called immunoglobulin A (IgA) lodges in your kidneys. This hampers your kidneys’ ability to filter waste, excess water and electrolytes from your blood. Over time, IgA nephropathy – also called Berger’s disease – can lead to blood and protein in your urine, high blood pressure, and swollen hands and feet.

IgA nephropathy usually progresses slowly over many years, and although some people eventually achieve complete remission, others develop end-stage kidney failure. No cure exists for IgA nephropathy, but certain medications can slow its course.  Keeping your blood pressure under control and reducing your cholesterol levels also may help keep IgA nephropathy in check. (My cholesterol is under 125!)

Conditions or factors that may be associated with the development of IgA nephropathy include:

  • Genes. IgA nephropathy is more common in some families and in certain ethnic groups, suggesting a genetic component to the disease.  (My grandfather died of Kidney Failure and he was not a diabetic.)
  • Cirrhosis, a condition in which scar tissue replaces normal tissue within the liver
  • Celiac disease, a digestive condition triggered by eating gluten, a protein found in most grains (I have this.)
  • Dermatitis herpetiformis, an itchy, blistering skin disease that stems from gluten intolerance  (I have this, DH is now recognized as the skin manifestation of Celiac Disease and is a symptom of CD.)
  • Infections, including HIV infection and bacterial infections

Link to the Mayo Clinic: http://www.mayoclinic.org/diseases-conditions/iga-nephropathy/basics/symptoms/con-20034366

As usual, I hope you have found this information useful and as always take control of your health!

Gluten and Neurological Issues

From 2012 Newsletter:
One of my friends suffered from seizures for most of her life. Her mother has Celiac Disease. However, my friend did not display any of the common symptoms; so she was not tested.  She decided to get tested and she found out that she also had Celiac Disease. She went on the Gluten-Free diet, her seizures stopped and she is off all seizure medications.
“The relationship between Celiac Disease and Epilepsy has been documented in medical journals for decades. Unfortunately, it is something our neurologists rarely consider as an underlying possibility in cases of idiopathic epilepsy.  Recent research is also showing that gluten sensitivity can manifest outside of intestinal celiac disease, and present solely as neurological disease in the form of ataxia, peripheral neuropathy, and seizures. This means that ruling out “celiac disease” does not absolutely rule out gluten related neurological disease…….”
-Very interesting information and for actual case information, go to: https://sites.google.com/site/jccglutenfree/seizuresepilepsy
For more up to date information, you may want to look into the book titled Grain Brain; written by Neurologist Dr. David Perlmutter. I will go into more detail about this in a later post where he also addresses gluten sensitivity as well and the effects it can have on the brain.

504 Plans For School Children with Celiac or Food Allergies

Food Allergies and Celiac Disease have been recognized under Section 504 of the Rehabilitation Act and the ADA (Americans with Disabilities Act). Many parents have put these plans in place to safe guard their child at school. I have written several articles over the years about the importance of having a 504 Plan for your Celiac and/or Food Allergic Child in the school. Countless customers have told me  stories about their child ingesting gluten or being exposed to allergens at school.  A 504 plan puts your child’s needs in writing and it has to be followed at school. Often parents tell me that their child’s school tried to discourage this. If you don’t have a 504 Plan in place, the school does not have to do anything to accommodate your child.”

Recently our Baker, Jennifer, got a 504 Plan in place for her Celiac son at his elementary school. This plan should be able to follow him through middle school and high school and it can be altered as needed.

Jennifer says; “Even if you think your school is doing an excellent job in handling your child’s celiac disease it’s still a good idea to have a 504 in place. What if your family has to move? The new school might not be as accommodating. The 504 will move with your child and they will be required to take the necessary precautions. What if your current administration (principals and asst principals) change? The new administration will be required to follow the 504 plan guidelines.”

The American Celiac Disease Alliance has great resources as does FARE (Food Allergy Research and Education). The links below give you samples and guidance.

http://americanceliac.org/for-families/

http://www.foodallergy.org/managing-food-allergies/at-school

Nutritional and Vitamin Deficiencies and Celiac Disease

26 Nutritional Deficiencies and Those Symptoms in Celiac Disease

I wrote this article in 2011 and republish it each year in my newsletter. I decided to put this on my blog, so folks can access it anytime because customers are constantly asking me to forward this article to them.

I am shocked at the number of customers who come into the Cafe with Celiac Disease who tell me that they have never been tested for any vitamin deficiencies. Every day I see customers in the Cafe who are complaining of many of the symptoms that I had; which were primarily caused by my vitamin deficiencies.

I never would have attributed my symptoms to vitamin deficiencies because so many of us don’t know the symptoms of the deficiencies.  I think there are two reasons for that; in America, food is so plentiful that we, nor our doctors, look at vitamin deficiencies as a cause of our health problems and because some may not know the symptoms of the deficiencies that often go hand in hand with Celiac Disease (CD).   When I started doing my own in depth research on CD, I was able to figure out what my deficiencies were before I had the lab tests done.  Those tests would never have occurred had I not taken it upon myself to learn the symptoms of these deficiencies and insist on the lab work.  Once I got my vitamin deficiencies cleared up, many of my symptoms were gone too.

It is amazing what a person can do when they are sick and tired of being sick and tired and don’t want to hear one more doctor offer them an Rx for an antidepressant. I have been there and done that, all my symptoms still remained, I just did not care how sick I was when on the anti depressants, my step kids could have set the house on fire and I would not have cared or even flinched; I probably would have found something “pretty” about the flames as they were engulfing the house!

I am not a doctor, but with all of the attention on Celiac Disease, one would think that the vitamin deficiencies often caused by untreated CD would be in the forefront, but it is not.  The two biggest problems I hear customers in the café complaining about after a Celiac Diagnosis is they are having cross reactions to other foods and they complain of symptoms that appear to be complications from vitamin deficiencies.  The majority of customers say they are just told by their doctor to eat Gluten Free and that is about it.  No vitamin testing and no thought or discussion by some of their doctors is given to major cross reactive foods or vitamin deficiencies that often accompany a Celiac Diagnosis; they are being overlooked.  Many customers have not had any follow up or a meeting with a dietitian or nutritionist, and that is shocking. In the past 3 weeks I have met more than a few customers with heart failure and celiac disease and one on the transplant list with a machine keeping him alive and he is probably still in his 30’s. Some with kidney failure and celiac are on the transplant list or had their transplant already.  Which came first the Celiac or the Heart or Kidney Failure?  I am betting it would be the Celiac, but it was missed.  Heart and kidney failure is hard to miss.  Severe vitamin deficiencies and untreated Celiac Disease can cause so many other serious problems! Please be aware and learn as much as you can about your Celiac Disease.

If you have not been in yet, we are a café where everyone talks with everyone in the dining room and many times it is like a mini support group breaks out.   Customers are seeking info and support from each other because many are not getting what they need from their doctors.  The conversations are amazing and I really wish I had One Dish Cuisine Cameras, so I could show doctors what their patients come in asking others about!  It is great to see it when a customer comes back in and tells the other customers,” I went off dairy and my diarrhea went away in less than a week”  or  “my rash cleared up in a month when I went of gluten and dairy, the steroid cream did not do anything”.  So, once again, here is some pertinent information and it is up to you to decide what to do with it.  It seems that customers want to treat the actual problem; not just the symptoms of the problem with a drug; they want to know what the underlying problem is and fix that.

Please review the following symptoms and deficiencies. If you feel you may be deficient, please ask your doctor to test your vitamin levels.   I am not a doctor and I am not trying to scare you; as usual, I am trying to keep you informed.  Unfortunately; I don’t know of any other place where you will find this information unless you purchase the book I reference at the end of this article. This book is also available in the library at One Dish Cuisine Café, Deli and Bakery; if you would like to look at it when you are in.

Here is just one example from my many vitamin deficiencies.  My vitamin D levels  test results were a 2 and a 7, with 35 being the minimum level they want you at. You can bet that I had all of the symptoms of a Vitamin D Deficiency and now I take a mega Rx dose of Vitamin D that is prescribed by my doctor.

Check this out, all of it, I bet you will have an “ah ha” moment or two!   Maureen

         There are 26 Nutritional Deficiencies found in Celiac Disease

-Macronutrients and Micronutrients
-Fats, Acids, Minerals and Vitamins
Macronutrients

Carbohydrates (Glucose)-   Affects Blood, Nervous, Sensory, Skeletal and Urinary Systems, common in untreated Celiac Disease

– Neurologic Symptoms involving hypoglycemia with irritability, difficulty concentrating, dizziness, restlessness, headache, visual disturbances, faintness, nervousness, hunger, fatigue and in some people, violent behavior. Metabolic symptoms include weakness and failure to gain weight in a child. Caused by damaged villi and limited absorption.

– Fats (Essential  Fatty Acids)

Omega- 3

Alpa-Linolenic Acid (ALA)-Affects Blood, Cardiovascular, Immune, Integumentary, Nervous, Reproductive and Sensory systems.

-Symptoms include Hypertension, artherosclerosis, elevated triglycerides, inflammation, short bleeding time, impaired vision, dry eye syndrome, peripheral neuropathy, mental and behavioral disorders, apathy, excessive thirst, split fingernails and ear problems. Caused by malabsorption in CD and lack of necessary vitamin and mineral cofactors including zinc, magnesium, manganese and vitamins B3, B6 and C.

Docosahexaeonoic Acid (DHA)-Affects Blood, Cardiovascular, Immune, Interumentary, Nervous, Reproductive and Sensory systems.

-Symptoms include slow and or faulty thinking, inability to concentrate, apathy, brain atrophy, essential hypertension, atherosclerosis, elevated blood triglycerides, hypertension and bleeding problems. Results from malabsorption in CD and lack of vitamin and mineral cofactors (zinc, magnesium, manganese and vitamins B3, B6 and C.

Eicosapentaeonic Acid (EPA)- Affects Blood, Cardiovascular, Immune, Integumentary, Nervous, Reproductive and Sensory systems.

–  Symptoms include hypertension, artherosclerosis, elevated triglycerides, depression, apathy, bipolar disorder, the schizophrenia spectrum disorders, ADHD, Dislexia, dyspraxia, the autistic spectrum disorders, dry eye syndrome, eczema, psoriasis, dry skin, PMS, short bleeding time, excessive thirst, sleep disorders. Results from malabsorption in CD, lack of necessary vitamin and mineral cofactors including zinc, magnesium, manganese and Vitamins B3, B6 and C.

Omega-6

Linoleic Acid (LA)- Affects Blood, Cardiovascular, Digestive, Immune, Integumentary, Nervous, Reproductive and Sensory Systems.

-Symptoms include poor inflammatory response to injury, prolonged bleeding time, low blood pressure, skin disorders, fatty liver, excessive thirst, apathy, infertility and in children, growth retardation and short stature. Results form malabsorption in CD and lack of necessary vitamin and mineral cofactors including zinc, magnesium, manganese and vitamins B3, B6 and C.

Arachidonic Acid (AA)-Affects Blood, Cardiovascular, Immune, Integumentary, Nervous, Reproductive and Sensory Systems.

– Symptoms include fault memory thinking, and learning, apathy, low blood pressure, poor inflammatory response, prolonged bleeding, excessive thirst, low birth weight, reduced head circumference in infants. In children, growth retardation and short stature may develop. Resulting from malabsorption in CD and lack of necessary vitamin and mineral cofactors including zinc, magnesium, manganese and vitamins B3, B6 and C.

-Proteins (Essential Amino Acids)-Affects all systems.

Arginine, Cysteine, Histidine, Isoleucine, Leucine, Methionine, Phenylalanine,    Proline, Tryptophan and   Valine.

Marked by fluid retention and malnutrition includingmuscle wasting, weakness, proor muscle tone, fatigue, loss of vitality, anxiety, insomnia, dermatitis, hunger, weight loss, wasting of subcutaneous fat and muscle, flaky skin, thinning hair, discoloration of hair (black or brown turns reddish), apathy, diminished intellect, susceptibility to infection, infertility and impaired growth in children.  Results from protein maldigestion and malabsorption in CD, including B complex vitamins.

Micronutrients

Minerals

Calcium- Affects Blood, Cardiovascular, Digestive, Immune, Integumentary, Glandular, Nervous, Reproductive and Sensory Systems.

-Symptoms include poor development of bones and teeth, rickets in children, osteomalacia in adults, osteoporosis, bone pain, easy fractures; muscle spasms/cramps advancing to tetany, mild encephalopathy; hypertension, anxiety, irritability, insomnia, excessive bleeding, pre-eclampsia in pregnancy, changes in saliva composition.  Cataracts in chronic deficiency.  Seizures and laryngospasm when severe.    Caused by malabsorption in CD, ionized calcium being rendered unabsorbable due to binding with unabsorbed fatty acids in the formation of soaps, inadequate absorptive surface area, reduction in Vitamin D regulated proteins needed for active transport and low blood albumin.

Copper- Affects Blood, Cardiovascular, Glandular,  Muscular, Nervous,  Skeletal Systems.

-Symptoms include anemia, leucopenia, neutropenia and bone abnormalities especially demineralization and apathy. Later symptoms are subperiosteal bleeding loss of pigmentation of hair and skin, hair curliness and loose skin. Caused by malabsorption in CD and possibly increased biliary loss.

Iron- Affects Blood, Cardiovascular, Digestive, Glandular, Immune, Integumentary, Muscular, Nervous, Reproductive, Sensory and Skeletal Systems.

Symptoms include pallor, fatigue, susceptibility to bacterial infection, reduced learning, inattention, apathy, sensorimotor incompetence, visual impairment, reduced memory, anxiety, anorexia, dysphagia, a pale, smooth and sore tongue, koilonychia, loss of vitality, infertility and defects in fetal development. Caused by malabsorption of iron in CD; deficiency in Vitamin C impairs absorption.

Magnesium- Affects Cardiovascular, Digestive, Glandular, Muscular, Nervous and Skeletal Systems.

Symptoms include anorexia, nausea, vomiting, hypertension, muscle pain/spasm, chronic fatigue, weakness, PMS, constipation, bone pain, headache, deptession, irritability, personality change, confusion, anxiety, insomnia and decrease parathyroid hormone. Contributes to osteoporosis.  Serious neuromuscular disturbances may develop including tetany, cardiac dysrhythmias, myocardial ischemia and seizures. Caused by malabsorption in CD being rendered unabsorbable due to binding with unabsorbed fatty acids in the formation of soaps an shift in electrolyte balance from loss of potassium in diarrhea.

Phosphorus-  Affects Body Composition, Cardiovascular, Digestive, Glandular, Muscular, Nervous, Reproductive and Skeletal Systems.

Symptoms include loss of appetite, muscle weakness weight loss, low milk production in lactating women.  Clumsy speech (dysrathia), paresthesia, confusion advances to stupor, seizures and coma.  Contributes to osteoporosis.  In children; imperfect bone and teeth development, rickets and retarded growth occur. Osteomalacia develops in adults.  Results from phosphate malabsorption  in CD, deficiency of OH, D3 which increases absorption of  phosphorus, depletion in vomiting and diarrhea and increased parathyroid hormone which increases renal excretion.

Potassium- Affects Blood, Body Composition, Cardiovascular, Digestive, Muscular, Nervous, Pulmonary and Skeletal systems.

Marked by fatigue, low blood pressure, dizziness, loss of appetite, thirst, vomiting, tremor, muscle aches/spasm, weakness of the lower extremities, drowsiness, confusion, anxiety, personality changes, mental depression and bone pain. Contributes to osteoporosis.  Sever symptoms include premature ventricular and atrial contractions of the heart, tetany, myoclonic jerks and convulsions.  Results from depletion in diarrhea and vomiting in CD.

Selenium- Affects Cardiovascular, Glandular, Immune, Muscular and Skeletal systems.

Marked by muscle weakness, loss of vitality, hypertension, cardiomyopathy, thyroid disorders, testosterone deficiency, lowers resistance to infection and predisposition to cancer.  Contributes to osteoporosis.  Results from malabsorption in CD.

Zinc-  Affects Blood, Body Composition, Cardiovascular, Digestive, Glandular, Immune, Integumentary, Muscular, Nervous, Reproductive, Sensory and Skeletal systems.

Marked by low energy, fatigue, slow wound healing, frequent infections, nervousness, depression, anorexia, impaired taste and smell, skin rashes and disorders including eczema, acne, psoriasis, photophobia, male infertility and white spots in fingernails.  In children and youths, anemia, hypogonadism and short stature develop.  Results from malabsorption in CD.

-Vitamins

Water Soluble

Thiamin (B1)- Body composition, Cardiovascular, Digestive, Muscular, Nervous, Reproductive and Sensory systems.

Marked by anorexia, weight loss, poor concentration/memory, difficulty recalling information, low morale, irritability, anxiety, sleep disturbances, apathy, mental confusion, weakness, fatigue, indigestion, abdominal discomfort, constipation, pain over heart, ophthalmoplegia and decreased urine output.

Late syndromes include:   “dry” causes changes in both legs, loss of feeling in toes, burning of the feet, muscle cramps in the calves and tenderness, pain in the legs. Later, loss of knee jerk reflex, tense calf muscles and atrophy of calf and thigh muscles occur.

Beriberi “wet” causes heart muscle disease: vasodilation and warm extremities, tachycardia (fast pulse), and sweating.  Cardiomegaly leads to heart failure with edema of face, legs, trunk and serous cavities with lung congestion, high blood pressure, distended neck veins, fatigue and inactivity.

Cerebral beriberi (Wernicke Kosakoff syndrome) results from acute deficiency on top of chronic deficiency: confusion, dementia, loss of speech sounds from larynx, and confabulation, then loss of immediate memory, disorientation, nystagmus, staggering walk, coma and death.

Results from Malabsorption in CD.

Riboflavin (B2) –  Affects Blood, digestive, Integumentary, Muscular and Sensory Systems.

Marked by loss of visual acuity, tearing, running and itching of eyes, photophobia, inflammation of conjunctiva, oral soreness and burning of lips mouth and tongue, cheilosis, purplish swollen tongue, hypertopghy or atrophy of tongue papillae, normocytic and normochromic anemia and seborrhea dermatitis. Predisposes to cataracts.  Results from malabsorption in CD.

Niacin (B3 ) –  Affects Body Composition, Cardiovascular, Digestive, Immune, Integumentary, Muscular, Nervous, Reproductive, Sensory and Urinary systems.

Marked by muscle weakness, anorexia, distorted taste, indigestion, scarlet swollen tongue with burning of the mouth, throat and esophagus, abdominal discomfort and distention follow by nauseas, vomiting and diarrhea-serious and may be bloody from ulceration. Nervous symptoms include dizziness, poor memory, anxiety, apathy, depression, disorientation, confabulation, neuritis, tremors and hyperactivity in children. Skin can be cracked, itchy, pigmented red rash advancing to crustin skin eruptions sensitive to sunshine, itchy re wet areas from chafing and inflammation of mucous membranes of vagina and urethra.  Results from malabsorption in CD.

Pyridoxine (B6) – Blood, Cardiovascular, digestive, Immune, Integumentary, Muscular, Nervous, Reproductive systems.

Marked by anemia, increased homocysteine leading to atherosclerosis, lymphopenia, seborrhea, dermatosis, glossitis, stomatitis, cheilosis, peripheral neuropathies, weakness, sleeplessness, irritability, depression, apathy and impaired cell mediated immunity.  Convulsions in infancy.   Results from malabsorption in CD.

Folic Acid (B9) – Blood, Body Composition, Cardiovascular, Digestive, Glandular, Immune, Integumentary, Muscular, Nervous, Reproductive, Sensory.

Marked by megoplastic anemia, thrombocytopenia leading to bleeding, neutropenia leading to risk of infection, hyperhomcysteinemia leading to a atherosclerosis, glossitis, stomatitis, diarrhea, malabsorption, weakness, depression, apathy, psychiatric disorders, polyneuropathy, and neurologiacal abnormalities including seizures, migraine, and intracranial hypertension.  In men, impotence, hypogonadism and reduced semen quality may develop. In women, infertility, toxemia or pregnancy, miscarriage, abruption placenta, restless leg syndrome and congenital malformations can result. Results form malabsorption in CD.

Vitamin B12- Blood, Body Composition, Cardiovascular, Digestive, Integumentary, Muscular, Nervous, Sensory.

Marked by increase in plasma and urinary levels of homcysteine (leading to atherosclerosis), methylmalonicacid and aminoisocaproate, megaloblastic anemia giving a lemon yellow tint to the skin, pallor, thrombocytopenia in half of severe cases leading to risk of bleeding, neutropenia leading to risk of infection, apathy, anorexia, distorted taste, beefy red, smooth tongue with burning intermittent diarrhea and constipation, poorly localized abdominal pain, considerable weight loss, muscle stiffness and generalized weakness in legs, numbness, tingling and burning in feet. Spasticity and ataxia, depression and impaired thinking occur later.  Late signs include paranoia, hallucinations, confusion and delirium. Results from malabsorption in CD and is not due to autoimmune gastritis.

Vitamin C-  Blood, Body Composition, Cardiovascular, Digestive, Glandular, Immune,  Integumentary, Muscular, Nervous, Pulmonary, Reproductive, Sensory and Skeletal.

Marked by swollen ulcerated and bleeding gums and eventual tooth loss from infection, impaired wound healing, bleeding including bruising, petechiae, nosebleeds, conjunctival hemorrhage and splinter hemorrhages in nails, loss of muscle, weakness, fatigue, anemia, rheumatic pains in legs, arthritis resembling rheumatoid arthritis, lethargy, irritability, depression, hysteria, hypochondria and coiling of hair in skin with hyperkeratosis of follicles (bumps).  Edema of lower extremities appears late.  In infants, weakness of bone, teeth, cartilage and connective tissue, edema and hemorrhages occur due to gluten in formula.  Results form malabsorption in CD.

Fat Soluble

Vitamin A- Blood, digestive, Immune, Interumentary, Pulmonary, Reproductive, Sensory, Skeletal, Urinary.

Marked by repeat infections and poor recovery.  Visual Problems include nightblindness, impaired dark visual adaptation, dryness of the bulbar conjunctiva, chronic conjunctivitis, dryness of the cornea with haziness, cataracts, dysfunction of the retina, Bitot’s spots, xerophthalmia and blindness.  Dermatologic problems include dry, scaly, rough skin and plugged hair follicles- “goose flesh”.  Mucous problems include dry mouth, poor digestion and diminished mucous production in the digestive tract, lungs and urinary tract. Impairment of sperm formation in males and spontaneous abortion in females occurs.

Vitamin D- Affects Digestive, Glandular, Immune, Integumentary, Muscular, Nervous and Skeletal.

Marked by bone pain, easy fractures, osteopenia/osteoporosis, (bone thinning), osteomalacia (bone softening) in adults, affecting the spine with vertical shortening of the vertebrae, the pelvis with flattening and narrowing of the pelvic outlet and the lower extremities with bowing of the long bones; muscle weakness, defective coordination or walking, osteomalacic myopathy and spasm, psoriasis, decreased male fertility.  Results from malabsorption in CD.

Vitamin E- Affects Cardiovascular, Muscular, Nervous, Reproductive and Sensory systems.

Marked by loss of deep tendon reflexes, impaired vibratory and sensory sensations, changes in balance and coordination, weakness, retinopathy, abnormal clots, increased risk of cancer and arthersoclerosis.  Infertility occurs in males. Dysmenorrhea and reproductive disorders occur in females.  Results from malabsorption in CD and pancreatic insufficiency.

Vitamin K- Affects Blood, Reproductive and Skeletal systems.

Marked by abnormal bleeding, including easy bruising, nosebleeds, bleeding gums, gastrointestinal bleeding, excessive menstrual bleeding and blood in the urine.  Contributes to osteoporosis. Results from malabsorption in CD, diarrhea.

(Source: Recognizing Celiac Disease by Cleo J. Libonati, RN, BSN)

*Check out our Resources Page on our website for links to the above and the 300 signs and symptoms of Celiac Disease.

She Thought She Was Gluten Sensitive, It Turned Out She Had Celiac Disease!

She Thought it Was Just Gluten Sensitivity; When She Was Really a Celiac! This is a true story. One of my friends, who also happens to be the person who does all of our graphics, website and advertising, was sick for a few years. After hospitalizations and many different health issues, I urged her to get tested for Celiac Disease and see a gastroenterologist. She never saw the gastro and was not getting any answers from her regular doctors; so she went the alternative medicine route; where she was told about gluten sensitivity, but was never tested for Celiac Disease (FYI: stool, saliva and IgG blood tests do not diagnose or rule out Celiac Disease).

She removed gluten from her diet and was feeling better. But since she was under the assumption that she was only gluten sensitive; she went back on gluten after about 5 months of eating GF. Her many symptoms returned.  After about 6 months of eating gluten again, she was not doing well at all.  She asked me about Celiac Disease..and told me her symptoms. Listening to her symptoms was like reliving my own past and I urged her to get tested for Celiac via blood work and biopsy with a Gastroenterologist (I referred her to the doctor).  She finally went to a Gastroenterologist who was well versed in Celiac Disease and both the biopsy and blood test came back positive this past December.

She is now committed to a GF Diet For Life and knows that she has Celiac Disease.  The good news is that she can now alert her family members so they can be tested and she can also watch her young children for symptoms; one is complaining of stomach aches. I am so glad that she took her health into her own hands and saw the proper doctor to diagnose her Celiac Disease.

What if she never got the real Celiac testing done and just kept eating GF; just assuming that she was gluten sensitive and cheated on the diet or was getting cross contaminated?
-She would stay in autoimmune havoc and would be opening herself up to all sorts of serious complications from untreated Celiac Disease. Gluten is poison to a person with Celiac Disease. If you don’t know for sure if you or your child are Not Celiac; then you are playing a dangerous game with your health and your child’s health. If you or your child have undiagnosed Celiac Disease, eating gluten is like purposely drinking Drano!

Often customers come in and claim a gluten sensitivity or “allergy to gluten” (there is no such thing as a gluten allergy) and they have no idea if they or their child have celiac disease because they did not have the Celiac Blood Panel or Celiac Intestinal Biopsy before going gluten free. Some say that they occasionally eat regular pizza and that they don’t worry if they get cross contaminated or ingest small amounts of gluten. If you are a Celiac and don’t know it, that piece of pizza may not kill you today, but the cumulative effect can cause serious complications! Do you want to do that to yourself or your child?

Remember: One negative test does not mean negative for life. If a family member has Celiac Disease, you should be screened yearly for it via blood work and intestinal biopsy because 10-20% of those with Celiac Disease test negative on blood but positive on the intestinal biopsy.  Take control of your health and the health of your child and see a gastroenterologist and get screened for Celiac Disease prior to undertaking a GF Diet because you must be eating gluten in order for your body to produce the antibodies that do the damage in Celiac Disease.  If your tests are negative but you have a skin rash, it may be DH (Dermatitis Herpetiformis); which is the skin manifestation of Celiac Disease. You should bring it to the doctors attention and you will need that rash to be biopsied.

* I love the service that our alternative medicine doctors provide, and I believe in what they do for their patients.  However, often their patients are missing out on a proper Celiac Disease Diagnosis if they don’t have the patient see a Gastroenterlogist who is well versed in Celiac Disease first. The tests that they use do not diagnose or rule out Celiac Disease. It makes a big difference when you are a Celiac or when you are just gluten sensitive because those who are gluten sensitive often live a different lifestyle when it comes to gluten. Someone with Celiac Disease must be so much more diligent.

Restroom Access Bill for Celiacs, Crohns, Colitis, IBS, etc:

Maryland and Delaware are just two of 14 states that have passed a bathroom access bill giving those in need access to “Employee Only” bathrooms.  The bill requires the person to carry a card that is signed by their doctor.  In Maryland, their is a database and you can print the card yourself and your doctor would have to sign the card. You can get information/card online from the Department of Health and Mental Hygiene.